Desperado Dad

I was very touched by this poem which echoes some of my feelings as a Mum living with what can be a debilitating muscle-wasting disease. My symptoms come and go in flares very much like lupus so I can have stretches of being fine and then have trouble moving much at all and incredible fatigue. Parenting can be very difficult in this space and yet I want to be all that I can be for my kids. Be their Mum.

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